Thursday, March 1, 2012

DNR

do not resucitate
what does this mean to you
to me
it is giving up
giving up the life of another
playing god and making decisions
that are not necessarily
what the person lying in that bed would wish

DNR
they asked me what my wishes were
when I entered the hospital
would I want them to make an effort?

I remember staring at Sean my RN
and asking ...
are you serious?
his reply was "Yes, I need to know"
he then went on to tell me that I was very ill
and in situations like this they ask
all patients

I wonder what my father in law said
when they asked him
or did they ask him?
My ex is power of attorney
they designated him so
thinking that our marriage
would be forever
not knowing that in less than two weeks
it would be gone and dissolved ...

I remember my mother in law apologizing
and saying, that part of the decision
was based on my advocacy
and they knew that
I would insist on the best of care
that I would make sure of quality of care
that I would respect their wishes

I read the email this morning
telling of a man
who is still fighting for his dignity
and trying to look after his own private needs
struggling against the bonds that bind
and determined to be as independent as he could be

and I think
does this sound
like a man
who would want a DNR?

and I wonder who is this man
that I once lived with for 30 years
as husband and wife
and I wonder
what happened along the way
that life lost it's value
and that it is okay to just sign it away
DNR

I have a feeling
it is going to be a very long day
a day of tears
a day of memories of a kind and gracious man
full of dry sarcastic humour
that I see in my son
and so the line continues
but I wonder of the generation between

the man who named himself God
and know that it is best if I leave things alone
as I have this very strong urge to
bitch slap

two weeks ago we were talking nursing home
now we are talking funeral home
I have this strong desire to bitch slap
but thank God that I am too far away

and so as his journey draws near to an end
I hope that they at least give him the dignity of not being alone
I would hope that
at least this small amount of dignity
would not be too far from their hearts
and I wish for him
Godspeed
with love and no pain
to be surrounded by those loved ones
who have already made their journey
and I send my love

and I apologize
I would have tried harder
but that is me, never the one to take the easy route
but the one that said
what if ...


Saturday, January 21, 2012

Would you, Could you ...

If you were told that this is it
the last thing that we can do
what would you do?

would you walk the walk
or would you look away

would you seek other options
or accept what you already know

would you take another look
at that bucket list
or would you just let it be ...

consider it to be unfinished business
what would you do?

a job, a life, a love undone ...
what would you do?

Friday, January 20, 2012

Another January, another relapse ...

I think that I am almost afraid to go see my oncologist
in the months of December and January
two years in a row now
where the news has not been good
two years in a row
that I have cried myself to sleep
two years in a row
where the fear that I feel
makes me quiver and shake
as I try to bite my lip
and suck it up

but how does one suck up fear?
how does one wake up to face another day of pain
another day of uncertainty
another day of not knowing what one needs to know
another day of missing my children
no matter that they are now adults
missing them all the same

relapse January 2011
a dose of Revlimid and Dex
a night of barfing in the toilet
inbetween rounds of the runs
at times the toxic crap leaving my body
both at the same time
and my crying in the night
as there is no one to share my pain ...

relapse January 2012
Velcade ... the final frontier
an IV injection
running poison thru my veins
the make it or break it possible fix to MM
and I cry ...
I cry for myself, my children, my family and friends
I cry because I am not ready
not ready to say good bye
not ready to say I am finished

once again, I find myself immersed in tears
and wonder ... why me? why me ...

January 2012 ... one more January, one more drug ...
if I can go one year than perhaps the new drugs,
the drugs full of promise and low side effects
should be here ...
it is hard to advocate for something that seems so far away ...
here it is January ... only 11 more months to go ...

Let me carry on ... just 11 more months until the new drugs are here ...
holding on for all I am worth ...
holding on by the toenails ...

and so, here it is January ...
I am hoping to turn this all around and go back to thinking of January
as the birthday month for two of my brothers ...
the birthday month of several friends ...
the month to get back in shape ...
to pay down the visa bill
January, the month to bundle up from the cold
to carry on like Myeloma has never effected my life ...

January ... a new month
a new year
a new way to fight the cancer that grows within

I will win ... I will just keep trying until I do ...